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Showing posts with the label Campaigns

"Find the Other 150" Campaign

Progeria, a rare, fatal, rapid-aging disease, is taking the lives of children around the world. All children with Progeria die of heart disease (heart attacks and strokes) at an average age of 14 years. The Progeria Research Foundation is on a mission to cure Progeria.  With your help, every child in the world can benefit not only when the cure is found, but also NOW from the advances the foundation has made. When this campaign launched in October 2009, the foundation knew of only 54 children, thus they have seen a tremendous and unprecedented increase thanks in large part to these awareness efforts. These children and their families and physicians are benefitting from the programs offered by The Progeria Research Foundation, including clinical trials that have resulted in treatments that are giving the children stronger hearts and longer lives. But statistically, experts believe there are another 150 – 200  children worldwide living with Progeria that have not yet bee...